Showing posts with label thankfulness. Show all posts
Showing posts with label thankfulness. Show all posts

Tuesday, December 6, 2016

Baby Steps and Tender Mercies

Paisley's time at Primary Children's Hospital - Days 8 & 9

Over the next few days Paisley continued dialysis. It was tricky because they would plan a certain amount of time on the dialysis machine, and then it would just stop working and they would have to stop the whole process and reevaluate. Then, sometimes the catheter in her jugular would weaken and she would have to get a new one. That is another ordeal. It was worth the struggles because we could tell the dialysis was really helping her. Gradually, her lungs began to improve and she started to pee more (a sign of good kidney function). Meanwhile, we were still crossing our fingers that the breathing tube could come out soon.
Occasionally, the effects of the sedatives would weaken and Paisley would start to wake up a little. This was good because we could get an idea of brain function and she was showing some good signs, but it was also very hard for me and my family. When she would start to wake up she would grimace in pain, make strained noises, and try weakly to raise her arms. It was clear to me that she was hurting and there was nothing I could do to help but hold her hand and tell that I was there and I loved her. That combined with the constant ups and downs of dialysis and disappointment over the breathing tube was very hard on me emotionally.
The night of day 9 Was one of those break-down moments when I needed to get away and have a good cry. Myles and I left Paisley in the very capable care of the ICU nurses, went outside to one of the hospital gardens, and sat on a bench under some trees. We talked and cried for a while, and then we had an experience that was very special to me.
We were talking about trials and how God helps us learn from them. I told him I didn't know what God wanted me to learn from all this. He gently said:
"Why don't you ask Him?"
"He doesn't talk to me!" I cried and hung my head and sobbed. Myles went quiet. For what seemed like hours (but was really only a minute or two) I just cried. I felt so lost and alone.
Then, clearly in my mind came the scripture reference- Doctrine and Covenants 121. I opened the scripture app on my phone (thank you technology) and looked up the section. These verses stood out to me:
"O God, where art thou? And where is the pavilion that covereth thy hiding place? How long shall thy hand be stayed, and thine eye, yea thy pure eye, behold from the eternal heavens the wrongs of thy people and of thy servants, and thine ear be penetrated with their cries? [...] My son, peace be unto thy soul; thine adversity and thine afflictions shall be but a small moment; And then, if thou endure it well, God shall exalt thee on high; thou shalt triumph over all thy foes. Thy friends do stand by thee, and they shall hail thee again with warm hearts and friendly hands."
It was as if God Himself were saying it to me personally. He was talking to me. I knew it, Myles knew it, and I knew that God was listening to my every prayer and cared about every detail of my struggles. I felt such comfort! Myles and I hugged and cried some more.
I am so grateful for the scriptures. I am so glad that I studied them in seminary and religion classes, and I am so thankful I knew that scripture well enough to find it when I needed it. I know that the scriptures are God's word and he speaks to us personally through them. They bring the spirit and open a conduit to heaven. If you ever feel lost and alone, open the scriptures. God is there for you and He will give you what you need. Whether you need comfort, love, or guidance, He is there for you always. Just reach out.

Wednesday, November 11, 2015

To the Music Therapists Who Sang My Daughter to Sleep

November is the month of Thankfulness and there are 2 people I am thankful for today. The problem is, I don't know how to tell them, since I don't remember their names.

To the Music Therapists Who Sang My Daughter to Sleep,

My 2 year-old daughter was in rehab in the Neuro Trauma unit of Primary Children's Hospital recovering from a very serious illness which had affected her brain. It was early September, 2014.
I was excited for you to come! I love music, and believe in it's power to help other's heal and stimulate development. You came prepared with your guitar and gave my daughter instruments to play along to fun songs designed to help her recovery. Her participation was minimal and it soon became clear that she was too tired to cooperate, and how do you persuade a struggling toddler? Wanting to help in any way you could, you offered to sing her to sleep.
"Are there any songs she likes to fall asleep to?" You asked.
"Do you know any primary songs?" I replied
In my church we use primary songs to teach children about Jesus Christ and God's plan. I don't think you were members of my church, but you did know one song - "I Am A Child Of God." You began to play. I sat there on the bed of the hospital room cradling my daughter, rocking her like a newborn, and I sang along.

"I am a child of God
and He has sent me here;
has given me an earthly home 
with parents kind and dear.
Lead me, guide me.
Walk beside me.
Help me find the way.
Teach me all that I must do
to live with Him someday."

I began the second verse; "I am a child of God, and so my needs are great." That line was all I could manage before the sobs came. I was overcome with thoughts of the great needs of my beautiful daughter, struggling to recover from this serious illness at such a young age. God had given her to me and it was my responsibility to take care of those needs. I thought of my own great needs as I was also struggling through this very difficult time. I thought of all the people God had sent to me to help me with those great needs - including the two of you.
You continued to play and hum along to the sound of my sobs. You respected my pain and sustained me with your heavenly tune. Your music brought such great comfort as I felt the love of the Lord for me and my daughter. My weeping was an essential release, a way to remove some of the stress that had burdened me for so long. Your beautiful music made that possible.
I believe that music can bring peace, hope, and healing in a most beautiful and powerful way. It connects us to those around us and reminds us that we are not alone in our emotions. Your music did that for me.

Thank you, for helping in any way you could.
Thank you, for using your amazing talents to benefit those who truly need it.
Thank you, for knowing the song which meant so much to me.
Thank you, for respecting the struggles of me and my daughter.
Thank you, for facilitating that therapeutic release of pent up stress.
Thank you, for finding the beauty in my pain and struggle.
Thank you, for sharing your love with me, and reminding me of the love of God, family, and friends.

I still weep when I think of this powerful experience. You cannot know the effect it has had on me, or the effect you have on all those you work with. My daughter probably doesn't remember you (I don't think she remembers anything from her time in the hospital) but I will never forget the power you gave me.

Thank you.

Sincerely,
Melodie, the weeping mother.